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Rank: Advanced Member
Groups: Registered
Joined: 4/20/2010
Posts: 153
Location: Kent
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Hi Just wondered if anyone had any advice or how they feel having MTX by injection?  I have my consultant appt tomorrow and think this might be the next option for me as i've tried MTX and the other drug beginning with S in tablet form (sorry its 3.40am...can't sleep again and in pain) I had to stop taking as they both gave me an upsets stomach, I'm also suffering with depression and anxiety and taking pills for this also and although i feel a lot better I'm still fed up with how I feel. So at the mo I'm not really taking anything apart from paracetamol and diclofenac until i see my consultant tomorrow but the last few days have been the worse I have been for a long time and everything is an effort or uncomfortable to do.  Sorry to moan as I've only been suffering with RA for two years and i know that some of you have had to cope with this for a lot longer, but it really gets you down sometimes doesn't it. Take Care Lou x I love people who can make you smile even when you do not feel like smiling. x
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Rank: Advanced Member
Groups: Registered
Joined: 3/4/2010
Posts: 576
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Hi Lou - sorry you were up and feeling sore and fed up in the night. Hope you managed to get back to sleep. MTX by injection might be an answer. It might be that you need a combination of drugs to get your RA under control.
I would definitely be asking the "What's next?" question of your rheumy on Thursday. 2 years may not seem long to a DR but it is to us. It is a very long time to have to put up with pain and uncontrolled RA. Let us know how you get on xx Ailsa
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Hi Lou,
Sorry to hear how much you are suffering. Hope you managed to get some sleep.
A lot of people find mtx by injection gives them far less side effects than the tablets so it is worth a try.
I hope your consultant can get you onto some suitable treatment soon.
Love, Doreen xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/13/2010 Posts: 118 Location: Shrivenham, Oxfordshire
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I switched to mxt injections 4 weeks ago because the tablets were making me feel so rough. So far it has been brilliant I've had no side effects from the injections.
I was a bit nervous about doing it at first but in fact it is really easy. I would definitely say give it a go. I was very apprehensive at first - you can read my forum thread about half way down the drugs page.
Take care
Becky
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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I agree - go for it, easy to do and no side effects. xx
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Rank: Advanced Member  Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Suggest you go well prepared and ask about 'what next'. Good luck to you
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Rank: Advanced Member
Groups: Registered
Joined: 4/20/2010
Posts: 153
Location: Kent
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Thank you. Really good to hear that mtx injection is ok and also fewer side effects for you. Have my appointment later today and hubby is coming with me, so when im asked how I am and i do my usual "Im fine" when Im not, i think he will be honest for me, although saying that i dont think i would do that this time because i think i have got to the lowest point with it and very fed up. After having a bad nights sleep on Monday, the painkillers i took in the night made me feel ill in the morning so i had to get the later bus to work when i felt better, then when i got to work, i was asked how i was and i burst into tears...how embarrassing  but the ladies i sit with were lovely and chatting to me and made me tea and looked after me all day, which was really nice. Just so fed up of it now, i guess the good thing is Im seeing my consultant when I'm in pain as i guest they then get to see you at it worse. Thank you for your support and i will let you know how i get on. Take Care Lou xx I love people who can make you smile even when you do not feel like smiling. x
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Rank: Advanced Member
Groups: Registered
Joined: 12/8/2009
Posts: 43
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Hi Lou
Sorry you are feeling so bad.I switched to mtx injections to make it stronger so that might help you as well. I felt sick and had that horrible taste since injecting i don't even feel like i take it anymore and it's easy to do.
Good luck today.
Poppyxx
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Rank: Advanced Member
Groups: Registered
Joined: 4/20/2010
Posts: 153
Location: Kent
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Well what a day! Appointment went well and going to start mtx by injection but won't be for a few weeks as they need to order it in then i have to go for injection training! Also got to have some xrays. But i was in a lot of pain today so good in one way that i was seeing him whilist feeling this bad. I did start to get tearful when he was examining me, just really had enough today. But i do feel happy about switching. Prior to my appointment i had the dentist, normally no problem at all but today i was told i need to wear a guard at night because my teeth are grinding, 350 pound it willl cost for a guard! Then i called my GP's for my recent blood results, esr high which i was expecting also showed that i was borderline anemic, then at the hospital my blood pressure was slightly high!! Also, do any of you take cod liver oil? Keep wondering whether to. Thank you for your support over the last few days  Take Care Love Lou x I love people who can make you smile even when you do not feel like smiling. x
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 856
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Hi Louise
Glad that they are sorting things out for you but sorry you have to wait so long. I had to wait for quite a while before I could get an apointment to start mtx- I'd been in so much pain. It's unacceptable really that we have to wait so long and endure yet more pain.
It could almost be me you are describing- I'm also on a combination of sulf and mtx, slightly anaemic and developed high bood pressure since getting RA. And as for depression and anxiety- don't get me started!! ( though I think work is a big factor in my case). I've never felt so down as I have since being diagnosed with RA.
Your mouth guard seems rather expensive- mine was only about £150- and that was private.
I've had RA for 3 yrs and still can't come to terms with it. I've been getting stomach problems recently so was sent for a colonoscopy ( not nice!!) but all was normal so I'm going to ask the rheummy about it. My gp seemed to think it wasn't the drugs but having read other posts on here I'm not so sure. I' m also on meloxicam anti inflammatories which are rather strong.
Your work collegues sound lovely -it maes such a difference.
Hoe you get some relief soon.
Take care
Maria x
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Rank: Advanced Member Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Hello Louise
Glad your RA appointment went well. Hope you get the injections quickly so you can be out of
pain.. I do understand exactly how you feel I really get cheesed off, with pain, fatigue and everything
which goes with RA. I am waiting to start Humira/TNF confirmed to start in December - delivered to
me 2nd week in Feb but not started as I have had an infection. Boo Hoo. soo frustrating.
I developed high BP and Low Depression since I was diagnosed since Oct 2008. It is horrible
taking so man tablets. However I am aware I need to continue with the tablets for these conditions
in addition to the RA.
Spring is Sprung this week. Better weather will always make us feel better.
Take care
Rose
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Rank: Advanced Member  Groups: Registered
Joined: 11/20/2010 Posts: 244 Location: Cornwall
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Hi Lou,
Not cod liver oil because I'm veggie but flaxseed oil for the omega 3s. Just a teaspoon a day. If you want to take a supplement for omega 3s take one high in these but low in omega 6, apparently one derived from other fish oils is better than cod liver but I'm no expert, there will be someone who is though! Not sure if it makes any difference but it can't do any harm so as ever I don't care who they are I just try to keep all the gods on my side!
Good luck with your injections, keep well
Sara
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Rank: Advanced Member Groups: Registered
Joined: 12/13/2010 Posts: 118 Location: Shrivenham, Oxfordshire
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I take an Omega 3 Fish oil. When I was first diagnosed I went to an information meeting arranged by the department in the hospital (there were podiatrists, physios, occupational health therapists, dietitians etc there all giving a little talk about the services they provide and how to access them) the dietitian said that that Omega 3 helps to reduce inflamation (as well as other benefits) and so we should try to increase them in our diet and it might be worth taking a supplement. I did take the advice with a pinch of salt (if only it was that easy!!) but I came to the conclusion it wouldn't do any harm, it doesn't cost too much and it might bring some benefit.
Let us know how you get on with the injections.
Becky
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